Tales From the Shutdown: ClinicalTrials.gov Gets Exemption
A plea from a federal lawmaker has allowed the National Institutes of Health (NIH) to update a clinical trials database that had been frozen as a result of the U.S. government shutdown, according to The Boston Globe.
Earlier this week, the Globe reported on a local man with advanced cancer who could not receive an experimental treatment at the Dana-Farber Cancer Institute because the trial had not yet been entered in ClinicalTrials.gov, the federal trials registry. Like other databases run by NIH, the site was still online but not being updated.
But after Representative William Keating (D-MA) contacted NIH about the matter, officials at the Department of Health and Human Services, NIH’s parent agency, told NIH that furloughed workers could be brought back to keep the database up-to-date, the Globe reports. The patient learned from his physician that he can receive the treatment. And a note on ClinicalTrials.gov now states that it is being “updated to the extent possible.”
You can read more shutdown coverage here.
*Correction, 4 October, 12:35 p.m.: According to the Globe, Keating contacted NIH Director Francis Collins, not the Department of Health and Human Services. This has been fixed.