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10 April 2014 11:44 am ,
Vol. 344 ,
- 10 April 2014 11:44 am , Vol. 344 , #6180
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Live Chat: Do You Have a Right to Your Personal Data?
28 January 2014 9:15 am
[Please hit refresh on this page if the video is not playing and it is after 3 p.m. EST. Leave your questions in the comment section at the bottom of the page. Our moderator will address them during the chat.]
Every day, people around the world subject themselves to tests, contributing data for research studies, clinical diagnoses, and care. But should donors have access to their raw data? What right, for example, should a donor have to download the raw output from a genetic screen of her saliva? As technology allows more people to access more information and makes tests once found only in expensive laboratories available and affordable from companies, should we worry about information overload triggering uninformed decisions from consumers? Or is more data always a good thing?
Join us on Thursday, 30 January, at 3 p.m. EST on this page for a live video chat with experts as we discuss the challenges of donor access to raw data.